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SERVICES
Lupus Alliance of Long Island/Queens
offers a variety of services for people with lupus,
their families and friends and others seeking to learn
more about lupus. These services include:
- Information Packets
-Packets containing information about lupus and the
services of our Alliance are sent to all that request
them.
- Support Groups - Our
support groups are held throughout Nassau, Suffolk and
Queens. A professional counselor who is also a person
with lupus facilitates these groups. For a list of
support group locations and times,
click here.
- LupusLine Long Island-
Queens - a free
telephone peer counseling service for people with
lupus and their families. click here.
- New Patient Orientation- Free classes for newly
diagnosed people with lupus, their families and
friends are held every other month at the chapter
office. Please check the calendar for dates.
- Education Day Programs -
An all day education program on lupus that helps
participants learn the medical facts about Lupus and
how to live with this chronic illness. The group is
limited in size so that experiences can be shared. For
registration information click here.
- Doctor Referral List -
Our Alliance provides a list of specialists in
Rheumatology and dermatology who have indicated an
interest in treating individuals with lupus. This list
contains physicians in Nassau, Suffolk, Queens,
Brooklyn and Manhattan. Call our office and we will
help you locate a doctor in your area.
- Newsletters -The Lupus
News Link is mailed quarterly to people with lupus,
their families, health care professionals, and
clinics. The newsletter gives current information
about lupus, research updates, volunteer
opportunities, chapter events and more.
- Seminars - An annual
seminar, as well as periodic workshops, is
specifically designed to meet the needs of the lupus
community. Presentations are by both medical and
business professionals. Topics are based on requests
from members and participants. Dates, topics and
locations appear in our newsletter and in our
calendar.
- Resource Library - Books
on the various aspects of lupus are available for
purchase. Members
are also able to borrow books and videos from the
Alliances lending library.
- Financial Assistance Program
- The Quality of Life program was developed in 2000 to
help individuals with lupus meet needs that are not
covered by other resources. Inquiries regarding the
eligibility and availability of this program may
contact our office at 1-800-850-9000. This program is
limited in scope and as a source of last resort.
- Speakers’ Bureau -
Trained speakers are available to address
professionals, schools and personal groups about lupus
and the Lupus Alliance, Long Island/Queens Affiliate. No group is too large
or too small. Call our office to schedule a speaker.
- Kids Programs - Our “Let
Kids be Kids” program is available to children 7-17
who have lupus or a family member with lupus. Day
trips to fun places are planned, transportation
included. Scholarships are also available to children
afflicted with lupus who have special needs that
cannot be covered by other means.
- Spanish speaking
staff
- Wheelchairs Available.
We now have 4 wheelchairs that have been donated to
this office. If anyone has a need for one, they will
be available for borrowing. Please
contact the
office to request one.
-
Community Respurces
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Please take note that the information contained
within this web site is provided for educational and entertainment
purposes only. The Lupus Alliance, Long Island/ Queens Chapter is
not certified to provide official medical advice or recommendations.
We also do not verify the information of sites linked to or from
this one and are not responsible for content contained therein. It
is recommended that if you have or suspect that you may have lupus
or any other medical condition, you consult a certified physician
before taking any action.
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